About Us

LUXEMBOURG ASSOCIATION FOR CHILDREN IN HOSPITAL

Positive Healthcare Experiences Matter

We aim to enhance pediatric healthcare experiences in the Grand Duchy by promoting and implementing evidence-based child-friendly healthcare practices which serve as buffering protective factors against the negative outcomes associated with potentially traumatic healthcare encounters.

Strengthening a rights-based approach to children’s health by taking steps to implement the Guidelines on Child-Friendly Healthcare, adopted by the Council of Europe Committee of Ministers.

Our Commitment

FOSTERING THE ADVANCEMENT OF CHILD-FRIENDLY HEALTHCARE FOR LUXEMBOURG

Healthy children are the future of Europe and the rights of every child to equitable access to healthcare which is appropriate, child-oriented and of good quality must be respected. The health and well-being of children are priority goals shared by all member states within the general context of human rights and the specific framework of children’s rights. Investment in children’s health and well-being ensures better outcomes for the entire lifespan and may reduce the burden on health and welfare systems, since a significant number of avoidable physical and socio-psychological problems in adult life have their origins in infancy and childhood. Effective and efficient child-friendly healthcare contributes to social cohesion.
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Best Practice Advocates

Child-Friendly Healthcare

In a nutshell, the goal of the child-friendly healthcare approach is to embed children’s rights in the healthcare system to ensure that the right things happen, to the right children, at the right time, in the right place, and using the right staff having the right support, to achieve the right outcomes, all at the right cost.

Children’s optimal health and development should be built on the core pillars of participation, promotion, protection, prevention and provision. Child life services are part of an integrated patient- and family-centered model of care and can be used as a quality measure in the delivery of healthcare services for children and families.

Child life services contribute to an organization’s efforts to meet the standards set forth by The Joint Commission (JCI) and other accreditation agencies, including effective communication, patient- and family-centered care, age-specific competencies, and cultural competence. Child life specialists significantly reduce the financial, developmental, and psychological costs associated with stress, pain, and anxiety that can persist far beyond initial healthcare encounters. As such, LACH strongly advocates for the importance of and need for child life specialist clinicians in pediatric healthcare clinics in Luxembourg, modeling this standard of care in other European countries and indeed globally.

Child life services contribute to an organization’s efforts to meet the standards set forth by The Joint Commission (JCI) and other accreditation agencies, including effective communication, patient- and family-centered care, age-specific competencies, and cultural competence. Child life specialists significantly reduce the financial, developmental, and psychological costs associated with stress, pain, and anxiety that can persist far beyond initial healthcare encounters. As such, LACH strongly advocates for the importance of and need for child life specialist clinicians in pediatric healthcare clinics in Luxembourg, modeling this standard of care in other European countries and indeed globally.

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Meet Us:

A Global Team, with Global Experience

Justin Petkus

Justin Petkus is an American & Luxembourgish global service-oriented dually certified Child Life Specialist (CCLS) and Family Life Educator (CFLE), and a registered psychologist with the Société Luxembourgeoise de Psychologie (SLP). He is a Co-Founder of the global non-profit organization: Pediatric Potential Inc., where he served as the Vice Chair & Director of Partnerships and co-developed the Pediatric Patient’s Hierarchy of Developmental Needs (PPHDN) model. In 2018, he was named Family Life Educator of the Year by the National Council on Family Relations (NCFR) in special recognition of his research and practice, and in 2019 The Association of Child Life Professionals (ACLP) recognized Mr. Petkus as the annual research award recipient.

Justin served children and families in both clinical and prevention based education roles within hospital and community settings. He has participated in program development, research projects, educator, and leadership development opportunities within these settings. He is an expert in therapeutic interventions to help children cope with psychological distress and fear related to healthcare experiences, and is an international consultant, speaker, instructor, and researcher in pediatric psychosocial care, child development, and family science. Mr. Petkus’ clinical training and rotations in pediatric psychosocial care/child life were completed at Kapi’olani Medical Center for Women and Children, Honolulu, Hawai’i, USA & Children’s Hospital of Michigan, Detroit, Michigan, USA. Additional experience while in training was acquired within the pediatric unit of Hospital General Dr. Aurelio Valdivieso in Oaxaca, Mexico, and Helen Devos Children’s Hospital in Grand Rapids, Michigan, USA.

Ranging from North America, South East Asia, the Middle East, Polynesia, and Europe, Mr. Petkus has experience providing culturally responsive care to pediatric patients and families. He was invited to contribute to the development and implementation of the first Child Life Specialist service at one of the largest and oldest academic medical centers in Germany: LMU Dr. von Hauner Children’s Hospital in Munich. He authored “Ein deutsches Modell aus dem Child Life Specialist Programm” and was responsible for training and mentoring the first team of German Child Life Specialists, leading to international recognition via a scholarship issued by the Association of Child Life Professionals and a sustainable new pediatric service. Prior, Mr. Petkus co-implemented the first sustainable Child Life Service in Qatar, where he clinically practiced and integrated pediatric psychosocial care practices and policies into multiple systems of care within the state’s public healthcare system at Hamad Medical Corporation, leading to recognition of the profession by the Ministry of Health. There, he co-authored: “Supporting Families and Children in Hospital: Policies and Practical Approaches to Pediatric Psychosocial Care,” published by the Doha International Family Institute (DIFI). He also trained the first and only Child Life Specialist in Laos, at Laos Friends Hospital for Children in Luang Prabang, who received recognition by the Association of Child Life Professionals as an international scholarship recipient in Washington, D.C.

Justin specializes in advancing outcomes for children and families within the unique cultural contexts of healthcare settings around the world. As a researcher, he served as the primary investigator on a multidisciplinary study in a Middle Eastern pediatric emergency center resulting in the 2023 publication in the journal Children’s Health Care entitled: “Parental Holding to Manage Children’s Anxiety with Venipuncture: Experiences from Qatar.” Following consultation on the ground at pediatric hospitals in Gaza and Bethlehem, West Bank, Palestine, he co-authored a needs-based assessment for child life services at pediatric hospitals in the country.

Mr. Petkus has presented at and served as an expert panelist on pediatric psychosocial care and the impact of adverse childhood experiences on the developing brain of the child at international conferences in South America, the Middle East, North America, and Europe. Justin is dedicated to fostering networks of resources and support for NGOs, hospitals, and clinics that enhance their ability to strengthen pediatric psychosocial outcomes globally.

Justin is also experienced in early-childhood development, prevention, and intervention. In the United States, he designed and implemented the first Family Life Education model in Early Head Start (EHS) Home Visiting. He led the restructuring of an EHS home visiting department integration of a seamless birth to 5 agency model. He contributed a chapter for the NCFR textbook: Family Life Education, The Practice of Family Science, where he published “A First Hand Account of Implementing a Family Life Education Model: Intentionality in Head Start Home Visiting.” He also served as foreword author for the book: “Transforming Early Head Start Home Visiting: A Family Life Education Approach.”

As a PhD Candidate, Justin specialized in Clinical and Health Psychology at the University of Luxembourg in the Institute for Health and Behaviour within the Department of Behavioural and Cognitive Sciences. He also completed doctoral coursework in Human Sciences with a specialization in Global Family Health and Wellbeing within the Global Consortium for International Family Studies at the University of Nebraska-Lincoln in the Department of Child, Youth, and Family Studies. Justin also holds a BS degree in Child Development, and an MS degree in Human Development and Family Studies, both from Central Michigan University.

As an Adjunct Professor at Miami University in the Department of Family Science and Social Work, Mr. Petkus co-developed and co-led the first Family Science and Social Work workshop at the John E. Dolibois European Center (MUDEC) entitled: “European Perspectives on Support for Children, Families, and Communities.” He is a strong advocate for child life services and family science in Luxembourg, where he published: “Implementing a Rights Based Approach to Child Health in Luxembourg: 30th Anniversary of the United Nations Convention on the Rights of the Child” and regularly facilitates sustainable partnerships and dialogue with government ministers and ministries, and non-governmental child, youth and family-centered organizations for enhanced university cross-cultural engagement in the Luxembourgish community via service-learning, internships, and child life and family science related collaboration.

Marie Friedel

Marie Friedel is a full Professor of Nursing Sciences within the Department of Life Sciences and Medicine at the University of Luxembourg.

Involved in several scientific committees of international conferences, regular peer-reviewer in high-impact journals, she is passionate about advocating for vulnerable minorities and collaborates with several nursing and pediatric palliative care education and research centers at an international level.

Her research is focused on quality of life, spiritual care, pediatric palliative care, patient centered outcomes measures by using mixed methods designs and a strong collaborative approach with all stakeholders.

Prof. Marie Friedel is Study Program Director of two programs: Bachelor in Sciences infirmières Spécialité: Infirmier in pédiatrie and Bachelor in Sciences infirmières Spécialité: Infirmier psychiatrique She worked for several years in a mobile pediatric palliative care team in Belgium. She was more than 20 years a Lecturer at the Nursing and Midwifery Department at Haute Ecole Léonard de Vinci in Brussels, Belgium and developed there several new creative and interdisciplinary curricula and training courses in nursing sciences, ethics and palliative care. She also served as Scientific collaborator at the Institute of Health and Society at UCLouvain and is visiting Lecturer at Université catholique de Lille.

She joined the University of Luxembourg in November 2022. Prof Marie Friedel trained as a pediatric nurse and holds an interuniversity Diploma in acute/chronic pediatric pain and pediatric palliative care (Université Claude Bernard, France).

Her doctoral thesis in public health (UCLouvain, Belgium) explored children’s quality of life in a family-centered context through a collaborative approach with children, their families and all national pediatric liaison teams in Belgium.

Potheini Vaiouli

Potheini Vaiouli (PhD in Early Childhood Special Education, Indiana University and MA in Music Therapy, New York University, US) has a strong, interdisciplinary background in early childhood education and music therapy. Her professional and academic expertise is channeled to promote inclusive practices and enhance advocacy for vulnerable populations. Her work focuses on promoting socio-emotional development of young children at risk and/or with diagnosed disabilities. Having worked as a researcher, an academic, and an educator/music therapist, Potheini values partnerships with families and interdisciplinary collaborations in the field.

Claire Tangredi

With 23 years of experience as a qualified Paediatric Nurse, Claire has held a range of senior positions across leading healthcare institutions in the UK and Luxembourg. Her career in the UK includes roles such as a Specialist Nurse in Fetal Cardiology at Great Ormond Street Hospital, Paediatric Manager for Children’s Services at The Portland Hospital, and Paediatric Lead Nurse at HCA Healthcare UK, where she provided senior clinical expertise and led service development. Claire has also held senior nursing positions at The Harley Street Clinic and Royal Brompton Hospital.

Claire’s expertise spans paediatric service development through the seven pillars of Clinical Governance. She has extensive experience in caring for children with complex health needs, including those requiring Paediatric Intensive Care and treatment for conditions such as asthma, diabetes, cardiology, oncology, ENT and spinal surgery.

Claire has been responsible for analysing care delivery, developing and implementing robust action plans, policies, and protocols to support evidence-based care. This included the design and implementation of audits, maintaining a robust risk management framework, ensuring compliance with regulatory standards, and promoting a no-blame learning culture. Claire regularly contributed to patient safety initiatives, leading Root Cause Analysis reports, presenting findings to senior management, and implementing changes in practice.

In addition to her clinical roles, Claire founded Eruditio First Aid Training Ltd, offering certified courses in aviation and paediatric first aid. Most recently, she worked as an Infirmière en Pédiatrie at the Ministère de la Santé in Luxembourg and is currently a school nurse at the European School of Luxembourg, Kirchberg.

Micha Massaad

Micha Massaad is a doctoral researcher at the University of Luxembourg, specializing in pediatric palliative care. With a background as a pediatric nurse in neonatal and pediatric intensive care units and experience in the humanitarian field, she advocates for compassionate palliative care. She strives to ensure a safe, supportive environment that promotes the well-being and dignity of hospitalized children through professional, child-centered care.

Lilja Gudjonsdottir